Canadian music star Céline Dion, has disclosed her battle with Stiff Person Syndrome, a neurological disorder that causes one’s muscles to tense uncontrollably.
It is said that there is no cure for the condition but work can be done to slow the progression.
In an emotional video on Thursday, the singer shared the news of her health issues, which she says, “affect every aspect of my daily life.”
“I’ve been dealing with problems with my health for a long time, and it’s been really difficult for me to face these challenges and to talk about everything that I’ve been going through,” she said.
“Recently I have been diagnosed with a very rare neurological disorder called the stiff-person syndrome, which affects something like one in a million people.
“While we are still learning about this rare condition, we now know this is what has been causing all of the spasms I have been having. Unfortunately these spasms affect every aspect of my daily life. Sometimes causing difficulties when I walk and not allowing me to use my vocal chords to sing the way I am used to,” she continued.
Stiff-person syndrome is a rare neurological disorder with features of other autoimmune diseases, according to The National Institute of Neurological Disorders and Stroke (NINDS), a division of the National Institutes of Health (NIH). It affects twice as many women as men, according to the organization and scientists don’t yet know what causes the condition.
The 54-year-old made the announcement in a video on her Instagram page, where she disclosed that her 2023 shows had been moved to 2024.
She noted that the rare disease, which occurs in one in a million people, had caused her to have spasms.
The Power of Love singer said, “Hello everyone, im sorry it’s taken me so long to reach out to you. I miss you all so much and can’t wait to be on stage talking to you in person.
“As you know I’ve always been an open book and I wasn’t ready to say anything before but im ready now.
The singer announced she will postpone her 2023 tour to focus on her health.
“It hurts me to tell you today, this means I won’t be ready to restart my tour in Europe in February,” she said.
Dion said she’s leaning on the support of her children who give her hope and listening to her “great team of doctors” to build back her strength and ability to perform again.
“I have to admit it’s been a struggle. All I know is singing. It’s what I have done all my life. It’s what I love to do the most,” she said.
Speaking to her fans, Dion said: “I miss you so much. I miss seeing all of you. Being on the stage. Performing for you. I always give 100% when I do my shows, but my condition is not allowing me to give you that right now. For me to reach you again, I have no choice but to concentrate on my health at this moment and I have hope that I’m on the road to recovery. This is my focus and I am doing everything I can to recuperate.”
Late last year, Dion had also planned a triumphant return to Las Vegas however “severe and persistent muscle spasms” prevented her from performing in both the tour and the upcoming residency.
Celine has postponed her European tour dates while she battles the condition
The 54-year-old made the announcement in a video on her Instagram page on Thursday, where she disclosed that her 2023 shows had been moved to 2024.
She noted that the rare disease, which occurs in one in a million people, had caused her to have spasms.
The Power of Love singer said, “Hello everyone, im sorry it’s taken me so long to reach out to you. I miss you all so much and can’t wait to be on stage talking to you in person.
“As you know I’ve always been an open book and I wasn’t ready to say anything before but im ready now.
“I’ve been dealing with problems with my health for a long time and its been really difficult for me to face my challenges and to talk about everything that I’ve been going through.
“Recently, I’ve been diagnosed with a very rare neurological disorder called the stiff person syndrome which affects 1 in a million people.”
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